Good Resource on a Rare Seizure Disorder

I am presenting tomorrow at a conference on Dravet's syndrome which is a rare type of seizure disorder.  Here is an excellent resource on this rare disorder.  If your child has Dravet's it is important that you work to educate the school, especially the nurse and the SLP, since schools are often  slow to accept new information even on more well-known disorders such as autism or similar conditions.