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October 25, 2005

Comments

Paula Wiggins

Charlie,

This blog is very informative. I'm only sorry I didn't read it sooner. I would have liked to hear Barbara Doyle again. She gave me so much insight on getting my son ready for the future. I'm looking forward to reading the blog weekly.

Thanks for giving parents another tool to keep in touch with the law and our rights.

Paula Wiggins

Lakshan

Perhaps What do you do?At the moment, I'm firgiung out what to do with a stupid question.Most of my socialization now occurs at work, so I haven't been asked this question in a long time. But I faced it plenty before I moved here. People can't stand the idea of not doing something. Well, let me revise: Middle-to-upper-class white abled folk can't understand how someone could not do something, that is, have an established, high-status, high-ambition career. I don't run in to a whole lot of questioning in groups with a greater proportion of lower-income folks (in my experience) about my job; they usually know that a job is a job, and if you don't have one then you just don't have one, and it doesn't make your life empty. Not that lower-class circles don't also have a value system that includes work-worship; some lower-income folk with whom I am acquainted just can't see not doing something as anything other than pure apathy/laziness/slacking/freeloading/lack of ethic. But I usually read more of a value on subsisting, whereas in higher-class circles I read more of a value on status/definition.And, of course, it almost always leads to I wish I could stay in bed/sit on the couch/watch TV all day! Disability is not your sick day. When I was stuck in the house all day, I could not stop longing to get out and do something. I desperately wanted to be working a regular job, or learning something, just doing something outside the house. But I couldn't. And yet most people interpreted my condition as being one of laziness and youthful irresponsibility, even knowing how deeply and passionately I longed to get outside and how much trouble I had with everyday tasks they saw those two things and still somehow came out with slacker kid. Probably because are taught to distrust our perceptions and experience (). It is only if you think the pain and fatigue and external barriers don't exist that you can interpret that condition as irresponsibility/lack of motivation. Especially when confronted with an excess of motivation!There's no good way to respond to it that I've found. All I've ever been able to do is either sputter or say Trade me, please, I want so badly to be able to work! Which, of course, they don't seem to hear at all. Sigh..-= amandawb4s last blog .. =-.

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